{"href":"https://api.simplecast.com/oembed?url=https%3A%2F%2Fat-a-total-loss.simplecast.com%2Fepisodes%2Fbri-chd-ebsteins-anomaly-rWNwMgP4","width":444,"version":"1.0","type":"rich","title":"Bri: CHD; Ebstein's Anomaly","thumbnail_width":300,"thumbnail_url":"https://image.simplecastcdn.com/images/ce6bfa4d-5c04-471d-a8fb-d5c6bfbb377e/3451b9a0-c22d-4cdc-a8c0-727dd89f43dc/living-20-instagram-20profile-20picture.jpg","thumbnail_height":300,"provider_url":"https://simplecast.com","provider_name":"Simplecast","html":"","height":200,"description":"Bri's daughter Caroline was diagnosed with a rare form of CHD, Ebstein’s Anomaly. Living in Sacramento, her and her husband moved to Stanford to ensure she received the best possible care. After Caroline was born, she spent 27 days fighting for her life until ultimately passing away peacefully in her mother's arms. Among her diagnoses it was also found that she had Pallister-Killian Syndrome (PKS) after she was born. \n\nBri talks about this journey. From finding out about this rare disorder, to how to proceed, to giving birth to her daughter alive, to then deciding to do surgeries and the days she lived in the NICU. Bri walked away with zero regrets, something a lot of loss momma's wish they could do. \n\n\nOur hope is that this story finds someone who needs to hear it. Even if their diagnoses is different, or their circumstances are in a different catagory, it helps to hear about how to cope, how to hold onto hope, and to help you realize you are anything but alone.\n\nInformation on Ebstein's Anomaly: https://www.ncbi.nlm.nih.gov/books/NBK534824/#:~:text=Ebstein%20anomaly%20is%20a%20rare,portion%20of%20the%20right%20ventricle%22.\n\n\nTo connect with Bri, find her on Instagram at @brihansen\n\n\n*************************************\nNOTE: I am not a doctor or a therapist. The views of my guests are not always reflective of my own. I am just a real life loss mom describing her experiences with life after loss. These are my experiences, and I'm putting it out there so you feel less alone. Always do your own research and make informed decisions!\nFor more REAL TALK about baby loss and grief, hit subscribe to be notified when another episode drops!\nSupport the podcast and shop the store! At a Total Loss Shop\n Instagram @thekatherinelazar \nYoutube: @thekatherinelazar\nEmail: thekatherinelazar@gmail.com\nWebsite: www.katherinelazar.com\n \nSome helpful resources:\nhttps://countthekicks.org/\nhttps://www.measuretheplacenta.org/\nhttps://www.pushpregnancy.org/\nhttps://www.tommys.org/\n \nLocal to Atlanta:\nhttps://www.northsidepnl.com/"}