{"href":"https://api.simplecast.com/oembed?url=https%3A%2F%2Fhigher-love-the-podcast.simplecast.com%2Fepisodes%2Fep-34-adultingwithdisabilities-nb9tRr2h","width":444,"version":"1.0","type":"rich","title":"Ep 34: #AdultingwithDisabilities","thumbnail_width":300,"thumbnail_url":"https://image.simplecastcdn.com/images/7081ca22-9f5f-45d1-ad8b-bc5c01142fff/106dbe5f-663d-4d52-a752-50d4b8cc45cb/ig-3000x3000-higher-love.jpg","thumbnail_height":300,"provider_url":"https://simplecast.com","provider_name":"Simplecast","html":"","height":200,"description":"Many of you have been traveling Rosie’s journey with us. \n\nIn case you haven’t…our daughter Rosie, who is now an adult, was diagnosed with Cerebral Palsy when she was a toddler\n\nAnd while those early years were nothing short of nightmarish… \nnavigating specialists, therapists, diagnosises and hospitals\n\nWhat we couldn’t have been prepared for is that there will be a time when this entire support system simply goes away\n\nIt’s the craziest thing really…\n\n\n\nIn their early 20’s, the highly curated, connected network of physicians, specialists, and therapists suddenly disappears\n\nAnd once they “age out” of medical care and facilities that have followed them their whole lives \nthese adults -with lifelong disabilities- are somehow expected to find a new team of physician and basically fend for themselves \n\nWhile, I understand these medical centers might be geared for children’s care, \nthe part that makes ZERO sense is that there are VERY few doctors and specific medical centers that are willing to take on adults with complex special needs\n\nYa’ll it’s the craziest thing!\n And I feel it speaks to the larger conversation of how we, as a society, view adults with disabilities. \n\n\nEp 34 #AdultingwithDisabilites isn’t the earliest conversation but it brings you on along for a small part of the ride as Reggie and I attempt to navigate the deeply frustrating aspects of this journey\n\nExpand your awareness on Adulting with Disabilities and listen today on Apple, Spotify or Google\n"}