{"href":"https://api.simplecast.com/oembed?url=https%3A%2F%2Fleadershipcultureinhealthcare.simplecast.com%2Fepisodes%2Fjesss-rule-K5EyNM_u","width":444,"version":"1.0","type":"rich","title":"Two Experts in the Room: How Jess’s Rule is Saving Lives","thumbnail_width":300,"thumbnail_url":"https://image.simplecastcdn.com/images/4b891130-d242-4a63-b92f-68a7b5f050f2/77a24bba-e075-492b-9b2a-27f2283d9c5a/season_8_andrea_brady_v2.jpg","thumbnail_height":300,"provider_url":"https://simplecast.com","provider_name":"Simplecast","html":"","height":200,"description":"In this deeply moving episode, Matthew Winn speaks with Andrea Brady, mother of Jessica Brady, who died in 2021 at just 27 years old from stage 4 adenocarcinoma of unknown primary — a cancer that had spread throughout her body before it was ever diagnosed.\n\nJess had been a healthy, non-smoking, health-conscious radio frequency engineer who designed satellites for a living. Over five months, she contacted her GP surgery 20 times with escalating and clearly concerning symptoms — a persistent cough, weight loss, night sweats, enlarged lymph nodes, and extreme fatigue. She saw six different GPs, never her named GP, and only had three face-to-face appointments. She was diagnosed with long COVID. When a private referral finally led to a biopsy, the truth was devastating. Jess died just three weeks later.\n\nAndrea describes how Jess herself was the driving force behind what followed. Even in hospital, Jess wanted her GP practice to understand what had happened, not through blame, but through awareness. For Andrea, channelling that grief into purpose was the only way forward. As she puts it, the doing cure, a phrase she borrows from author Michael Rosen who also lost a son, was the thing that kept her functioning.\n\nWhat began as a late-night campaign launch became a petition signed by nearly half a million people. After working with the Royal College of GPs, NHS England, and multiple Health Secretaries, Andrea recounts the persistence it took across four years and several ministerial changes— Jess’s Rule was formally implemented in September 2025.\n\nThe rule establishes that when a patient presents to their GP on a third occasion without resolution, their case should be elevated for review and their symptoms thoroughly investigated, regardless of age or demographic.\n\nAndrea is candid about what gets in the way of good care. Unconscious bias is central, the assumption that someone young, healthy and articulate is unlikely to have something seriously wrong. She also highlights how quickly an unsubstantiated diagnosis, like Jess’s long COVID coding, can embed itself in a patient’s record and shape every subsequent consultation. And she references research showing that patients are interrupted, on average, within 17 to 23 seconds of speaking, before they’ve had the chance to fully describe what’s wrong.\n\nThe Jessica Brady Cedar Trust, which Andrea co-founded in Jess’s name, has partnered with the RCGP to develop a learning module on early cancer diagnosis, funded the printing and distribution of Jess’s Rule posters to GP surgeries across England, and is supporting a three-year project developing an AI diagnostic tool for primary care. Interest in the campaign has now spread internationally, with oncologists and campaigners in Denmark, New Zealand, the United States, Scotland, Wales, and most recently the Isle of Man all making contact.\n\nThe response from GP practices has been, in Andrea’s words, the most heartening thing. Surgeries emailing patients to express their support, referencing Jess’s Rule on their answerphone messages, and writing to the Trust to ask for more posters. Most powerfully, doctors have told Andrea they thought of Jess during a consultation and called a patient back.\n\nAs Andrea says, quietly and with real emotion: Jess is doing the job.\n\nThis episode is a testament to what quiet persistence, integrity, and love can achieve — and a reminder that behind every campaign for change is a family who simply wanted to be listened to.​​​​​​​​​​​​​​​​"}